My name is Bethanie and I’m a 36 year old single mother of two wonderful daughters. I’m a strong woman who was diagnosed with a rare genetic condition called Von Hippel-Lindau Syndrome (VHL). This condition is hereditary. It was passed from my father to me, then passed to my youngest daughter.
I was a happy, healthy, mother-to-be walking to my 7-month prenatal check-up. My midwife noticed I was experiencing symptoms not consistent with pregnancy, so she sent me to get a brain MRI. Two large tumors were found in my cerebellum.