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Noah Has Friedreich’s Ataxia

Noah crossed the Golden Gate Bridge on foot.

Read His Story

Nancy Has Hereditary Spastic Paraplegia

Nancy saw the majestic Bridalveil Fall at Yosemite.

Read Her Story

Brad Has Schwannomatosis

Brad saw the lights on Broadway.

Read His Story

Rhianon Has Neurofibromatosis Type 2

Rhianon met her biological family for the first time.

Read Her Story

KYLIE HAS VON HIPPEL-LINDAU SYNDROME

Kylie swam with dolphins in Florida.

Read Her Story

KC Has Neurofibromatosis Type 2

KC ziplined in
the Smoky Mountains.

Read Her Story

BETHANIE HAS VON HIPPEL-LINDAU SYNDROME

Bethanie dined on a New Orleans Steamboat.

Read Her Story

CRYSTAL HAS VON HIPPEL-LINDAU SYNDROME

Crystal marveled at the NYC skyline.

Read Her Story

JUSTIN HAS VON HIPPEL-LINDAU SYNDROME

Justin honeymooned in Disneyland.

Read His Story

Being Positioned creates restorative experiences for individuals living with rare genetic disorders.

Through thoughtfully planned journeys, faith-based wellness retreats, and ongoing community, we provide space for rest, renewal, and support beyond the doctor’s office.

Wellness Retreat

October 1-4, 2026

Our faith-based wellness retreat is intentionally designed for women with NF1, NF2, Schwannomatosis & VHL who need space to slow down, reset, and connect.

Learn More

Our Mission

Your generosity supports our mission in three meaningful ways: through fully funded travel journeys, our annual faith-based wellness retreat, and ongoing community support through virtual monthly gatherings. Traveling to a new place and sharing experiences together has been shown to reduce stress, support mental health, and strengthen relationships. Give the gift of travel, today.

Donate Now

Our Story

Christina Menkemeller tells her personal story of being diagnosed with NF2 and her commitment as founder of Being Positioned to help others who are affected with genetic disorders.

Full Story

FACTS ABOUT RARE GENETIC DISORDERS:

350M

People worldwide are living
with a rare disease

7000

Different types of
rare disorders

50%

Diagnosed
as Adults
Find out more about rare genetic disorders.

Learn More

How We Work

Learn about how we create unforgettable travel experiences for individuals diagnosed with rare genetic disorders.

Explore

Apply for a Journey

Do you have a rare genetic disorder and dream of traveling?
Take our quiz and find out if you’re eligible.

Apply Today

Ways to Give

We’re on a mission to improve the lives of individuals diagnosed with rare genetic disorders – but we need your help. Check out our fundraisers, gift options, and more ways to donate.

Get Involved

Help someone go on a life-changing trip.

You can bring joy to people living with rare genetic disorders by helping us send them on a Being Positioned journey.

Donate Now

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