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Rhianon Has Neurofibromatosis Type 2

Rhianon met her biological family for the first time.

Read Her Story

KYLIE HAS VON HIPPEL-LINDAU SYNDROME

Kylie swam with dolphins in Florida.

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KC Has Neurofibromatosis Type 2

KC ziplined in
the Smoky Mountains.

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BETHANIE HAS VON HIPPEL-LINDAU SYNDROME

Bethanie dined on a New Orleans Steamboat.

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CRYSTAL HAS VON HIPPEL-LINDAU SYNDROME

Crystal marveled at the NYC skyline.

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JUSTIN HAS VON HIPPEL-LINDAU SYNDROME

Justin honeymooned in Disneyland.

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Being Positioned is a nonprofit creating unforgettable travel experiences for individuals affected by life-altering genetic disorders.

Travel has been proven to reduce stress, alleviate symptoms of depression, and help build meaningful relationships.

Give the gift of travel, today.

Donate Now

Our Story

Christina Menkemeller tells her personal story of being diagnosed with NF2 and her commitment as founder of Being Positioned to help others who are affected with genetic disorders.

Full Story

FACTS ABOUT RARE GENETIC DISORDERS:

350M

People worldwide are living
with a rare disease

7000

Different types of
rare disorders

50%

Diagnosed
as Adults
Find out more about rare genetic disorders.

Learn More

How We Work

Learn about how we create unforgettable travel experiences for individuals diagnosed with rare genetic disorders.

Explore

Apply for a Journey

Do you have a rare genetic disorder and dream of traveling?
Take our quiz and find out if you’re eligible.

Apply Today

Ways to Give

We’re on a mission to improve the lives of individuals diagnosed with rare genetic disorders – but we need your help. Check out our fundraisers, gift options, and more ways to donate.

Get Involved

Help someone go on a life-changing trip.

You can bring joy to people living with rare genetic disorders by helping us send them on a Being Positioned journey.

Donate Now

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